First Steps After an Autism or Sensory Processing Disorder Diagnosis
A compassionate, practical guide for families, caregivers, and adults navigating the first days and weeks after a new diagnosis.
1. Take a Breath â Itâs Normal to Feel Overwhelmed
Hearing the words âautismâ or âsensory processing disorderâ can stir up many emotionsârelief, confusion, grief, even hope. All of these feelings are valid. This diagnosis does not change who your child (or you) already are; it gives a framework to understand experiences and needs.
2. Gather Reliable Information
The internet is full of adviceâsome helpful, some harmful. Stick to evidence-informed, compassionate sources to guide your next steps:
- Medical & therapy guidance: Pediatricians, occupational therapists, and speech-language pathologists can clarify what supports may help.
- Trusted organizations: National and local autism communities; sensory integration organizations.
- Practical guides: Start with Sensory Processing 101 and then see Starting Therapy for getting appointments moving.
3. Build Your Support Network
Connecting with others who understand your experience reduces isolation and increases confidence:
- Find local parent groups, therapy centers, or online communities focused on sensory needs.
- If youâre an adult, look for autistic-led groups where lived experience guides support.
- Online support groups: Look for well-moderated Facebook groups and Reddit communities (e.g., r/autism, r/ADHD) where you can ask questions and learn from othersâ day-to-day strategies.
4. Create Your âFirst Toolsâ Kit
Start with a few affordable, flexible toolsâyou donât need everything at once:
- Chewable tools for safe oral input (Chewable Tools Guide).
- Fidgets or stress balls for transitions (Fidget Toys Guide).
- Visual schedules for structure (Daily Schedule Resource).
Want everything in one place?
We curated a simple starter kit that many families begin with.
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5. Normalize Emotional Health
Emotions change over time. Balance is the goal:
- Grieve if you need toâand celebrate strengths and progress.
- Consider a counselor experienced in neurodiversity (for you or your child).
- Remember: the diagnosis isnât a limitation; it opens more supportive paths.
6. Plan Next Steps Together
- Schedule a follow-up with your doctor or therapy team.
- Combine school/EI services with private providers where possibleâsee Starting Therapy.
- Explore at-home supports: Sensory Room Guide and Sensory Diets (Beginner).
- When ready, track what helps in the Sensory Diet App.
Youâre Not Alone
This journey is shared by countless families, educators, and adults learning to understand themselves. Step by step, youâll find strategies that bring more ease and joy to daily life.
